I repeated to myself, like a rosary, “That is not Brent’s story. The successes of osteosarcoma are not parading around this hospital for my emotional benefit. They are out there, living their lives. We will be as well.” It helped some when I would remind myself of this. But it was still incredibly hard.
4) What can I do? How can I help?
5) When it is over, it is not over
For so long, we counted the days until we finished chemo, then until Brent’s counts recovered…the magic day when we would leave oncology behind and we would get our life back. I do not want to be discouraging, but, for the record, your life will never be the same, and the considerations of cancer continue long past chemo. I am not saying that you should not look forward to that day, but the change is not as dramatic as you might imagine, which can be disappointing. There are scans, and labs and worries and well, just stuff. Brent is now 9 months out from chemo, but we have yet to go a week where I have not dealt with oncology for some repercussion of his treatment, and never mind the nonsense that we have for our ‘genetic concerns.’